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An 18-year-old British teenager, Rubie Boyton, remains unable to walk or speak two years after a cardiac arrest that followed undiagnosed seizures, her family says.
Boyton, from Ashford, Kent, had two prior seizure episodes that were reportedly attributed to anxiety by health services and given only symptomatic advice.
In May 2024 she collapsed in a park; a friend performed CPR until an air ambulance took her to King’s College Hospital in London where she was placed in a medically induced coma.
Doctors later diagnosed a rare genetic heart rhythm disorder, catecholaminergic polymorphic ventricular tachycardia (CPVT). Her brain was without oxygen for about 31 minutes, causing extensive neurological injury and dystonia.
Since waking she has regained some reflexes and can communicate by blinking, but requires intensive therapies, carers and home adaptations.
Her parents have left work to focus on her care and the family has launched a fundraising page that has raised more than $25,000 to cover treatments not funded by the NHS.


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